Privacy Policy

Welcome to the UK Vascular Research PPIE Registry. We take your privacy seriously and are committed to protecting your personal information. This Privacy Policy explains how we collect, use, and protect your data when you use our website.

1. Who We Are

We are the UK Vascular Research PPIE Registry, a University of Leicester initiative dedicated to the involvement and inclusion of the patient and public voice in all areas of UK vascular research study design and oversight.

2. What Information We Collect

We may collect the following types of personal information:

  • Your name and contact details (such as email address)
  • Information you provide when filling in forms on our website
  • Details about your visits to our website (e.g. IP address, browser type, and pages visited)
  • Any communication you send to us (e.g. emails or contact form messages)

3. How We Use Your Information

We use your information to:

  • Respond to your enquiries
  • Provide you with information you request
  • Improve our website and user experience
  • Manage our vascular research PPIE registry (if you sign up)

We do not sell your data to third parties.

4. Legal Basis for Using Your Data

We only use your data when:

  • You have given us permission (for example, by signing up to receive information about the registry)
  • We have a legitimate interest, provided this does not override your rights

5. Sharing Your Information

We will only share your personal information when absolutely necessary, such as:

  • With trusted service providers who help us run our website (e.g. email platforms)
  • If we are required to do so by law

All third parties we work with comply with the UK GDPR to handle your data securely.

6. How We Keep Your Data Safe

We use appropriate technical and organisational measures to keep your personal data secure. Unfortunately, no online system can guarantee 100% security, but we do our best to protect your information.

7. Your Rights

You have rights over your personal data, including:

  • The right to access your data
  • The right to correct any errors
  • The right to ask us to delete your data
  • The right to object to how we use your data
  • The right to complain to the Information Commissioner’s Office (ICO)

To make any requests, please contact us using the details below.

8. Cookies

Our website uses cookies to make your experience better and to help us understand how people use our site. Cookies are small text files stored on your device.

Some cookies are essential for the website to work properly, while others help us improve things like site performance and content.

You can manage or disable cookies through your browser settings, but doing so may affect how the website functions.

9. Contact Us

If you have any questions or want to exercise your rights, please contact:
Imelda Black at PPIVasc@leicester.ac.uk

If you have a complaint or concern surrounding the use of your data, please contact:                                                                                                                                                

  Parmjit Singh Gill, Data Protection Officer, University Of Leicester, University Road, Leicester, LE1 7RH. Email: dpo@leicester.ac.uk                

The Information Commissioner can be contacted at Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK95AF. Tel: 0303 123 1113. Email contact can be made by accessing www.ico.org.uk